An 11-year-old boy organized a coat drive over the weekend to keep others warm this upcoming winter. As YNN's Geoff Redick explains, the local boy is giving on a whole new level.
ALBANY, N.Y. -- Naseaph Williams is not your average 11-year-old kid.
"He has good days and bad days. Today happens to be somewhat of a good day. Let's hope it lasts," said Billie Young, Naseaph's mother.
Naseaph, or Nas for short, has Bannayan Riley Ruvalcaba Syndrome. Just 1,000 people are diagnoses with it in the entire world, and only 60 of those have it as serious as Nas.
Young explained, "This is his bag of medication that he takes all day, every day, just to function and carry on, like you and I."
Nas cannot walk. He suffers regular seizures, is susceptible to many types of cancer, and lives in constant pain. However, you would never know it. Nas is not characterized by his disease.
Nas is currently organizing a charity coat drive for this winter. The entire drive was imagined and engineered by only him.
"This was all on his own. Nobody coaxed him, nobody did anything. He just came up with the idea that he wanted to help people," said Young.
The idea of helping people is nothing new for the 11-year-old. On his birthday in May, he told friends and family not to give him presents.
Nas said, "I asked everybody to bring food items, so I can donate them to the original food bank."
With assistance from the Saratoga Springs Police Department, the Albany Fire Department and, the Encounter Boutique in Saratoga, Nas has already collected several dozen coats.
Like any kid, Nas his own wishes, including a handicap-accessible car, and a portable hot tub for exercise. He also hopes to visit a waterpark.
However, his disease makes his future uncertain.
"It could be today, it could be tomorrow. It could be next month, I don't know," said Young.
So Naseaph lives each day unlike any other 11-year-old.
But Nas and his family remain positive and confident. His mother added, "He's not done. He's definitely leaving a legacy."